Friday’s Photo Finish and Preparing for Battle

Evan's CrewToday Sweets and I are rockin’ our Evan’s Crew t-shirts in support of Team Evan’s Crew as they prepare to go to battle. Their battle begins by finishing the 163 mile bike ride for the Pan-Mass Challenge to raise money for the Dana Farber Cancer Institute and specifically to a fund supporting DIPG research.

DIPG, otherwise known as Diffuse Intrinsic Pontine Glioma, the monster that is a rare pediatric brain cancer that stole Evan,  an “awesome dude”, a son, a brother, a grandchild, a nephew, a friend….

DIPG is the monster that the team of 9 will ride against.

DIPG is the monster that needs to be brought down, and the only way to do that is finding a cure. Because right now, only 10% diagnosed with DIPG survive longer than 18 months.

Evan died one year to the day of his diagnosis.

Team Evan’s Crew has raised over $60,000. So far.

Because his family, his friends, his neighbors, his school, his community…..they have all come out to support and show that DIPG is NOT going to win this war. This war against pediatric cancer that is fought bravely one battle, by one undeserving child, at a time.

Unfortunately, too many brave battles have been lost already.

Team Evan’s Crew wants to change this.

So one mile at a time, they are going to cruise 163 miles in 2 days to show DIPG that Team Evan’s Crew is worthy of the fight. They are coming in strong, are going to finish strong…..and they will be back. One ride, two rides, a dozen rides….Team Evan’s Crew will only grow, and DIPG will begin to lose.

And with everyone’s help, because FUNDING is our main defense, the main way to find a cure for this disease that affects over 100 children every year, this disease that has already taken the lives of too many children, Evan’s Crew can beat this monster.

Evan’s Crew v. DIPG.

It is rivalry no family ever wants to enter. It is a fight Evan’s Crew is taking on because, well….they have to.

They do it to honor Evan. To honor other children like Caitlin. And Calle. And Cory.

Team Evan’s Crew v. DIPG.

GO TEAM EVAN’S CREW!

awesome dude

Have a great crazy day!

 

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5 thoughts on “Friday’s Photo Finish and Preparing for Battle

  1. So sad. Best of luck and the race. I pray for that incredible boy’s family and friends and that a cure is found soon! He looks like an angel and I’m sure his soul is doing important work now.

    • His parents, part of my family, are incredible in making sure his spirit is part of all they do. Thanks for reading!

  2. Pingback: A Boy, 2 Bike Rides, and Finding a Cure For Cancer | My Special Kind of Crazy

  3. Reblogged this on My Special Kind of Crazy and commented:

    This weekend my brother-in-law Tim and his wife, Aimee, will again ride in the Pan-Mass Challenge to help raise funds to find a cure for DIPG. So far over $60,000 has been raised that will go to the Evan T. Mandeville DIPG Fund at Dana Farber. Such an important race; for our family to honor and remember Evan; to raise money to find a cure for this devastating, terminal, only treatable by clinical trials disease that takes TOO MANY kids every year. Click on the links for Evan’s Crew, it is never too late to donate.
    Go Team Evan’s Crew! We’ll be rockin’ our Evan’s Crew t-shirts all weekend~!

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